Completed and Foundational Concussion Research 

Early research and participation in policy-setting panels helped position the Minds Matter Concussion Program to become a Frontier Program at Children's Hospital of Philadelphia with a diverse research portfolio.

Key Completed and Foundational Research Projects

Living Guideline for Diagnosing and Managing Pediatric Concussion

Christina L. Master, MD, FAAP, CAQSM served on a panel convened by the Ontario Neurotrauma Foundation and made up of experts from Canada and the United States. The aim was to update a 2014 guide to help healthcare professionals diagnose and manage pediatric concussion. Given the rapid increase in new literature since 2014, the evidence has evolved and changed for many of the previous recommendations thus requiring an updated version. The result is this web-based guide for healthcare professionals, parents, caregivers, schools, and community sports organizations related to identifying symptoms of a potential concussion and managing recovery following concussion. This guideline does not address concussion prevention.

Institute of Medicine Report on Sports-Related Youth Concussion

On October 30, 2013, the Institute of Medicine (IOM) released a report, Sports-Related Concussions in Youth: Improving the Science, Changing the Culture, which reviews the state of the science on sports-related concussion in children and youth ages 5 to 21. CIRP’s Co-Director and Director of Engineering Kristy Arbogast, PhD was a member of the 17-person expert committee that reviewed the science and created the evidence-based recommendations to improve concussion prevention, diagnosis, and management. 

Minds Matter: Concussion Care at CHOP

A Chair’s Initiative –- This program, funded by the Department of Pediatrics Chair's Initiative at CHOP and led by Kristy Arbogast, PhDChristina L. Master, MD, and Matthew Grady, MD, was a two-year initiative to develop and refine a state-of-the-science standardized pediatric concussion management program across all CHOP departments that diagnose triage and treat concussion. These include primary care, sports medicine, emergency medicine, neurology, trauma and afterhours triage call center. Impact evaluation was conducted leveraging CHOP’s EHR and provider surveys.

Concussion Registry Development

The initial objective of this concussion research, led by Kristy Arbogast, PhD and funded by a Children's of Hospital Research Institute Clinical and Translational Research Award, was to test the feasibility of creating a comprehensive registry of patients 5-21 years old diagnosed with concussion within the CHOP Care Network. Data capture how concussions are assessed, diagnosed, and treated.

Tasks involved a review of current data fields in CHOP’s electronic health records for capturing subject concussion information, as well as data collection from patients presenting for new concussion evaluation. Patients were recruited from CHOP specialty care outpatient clinics, including sports medicine and orthopedics. By capturing a standardized and comprehensive data set on every child with concussion, the Minds Matter Concussion Program team is forming a valuable resource that can be utilized to answer other important questions about prevention, diagnosis and management of this common injury.